Because of a lapse in government funding, the information on this website may not be up to date, transactions submitted via the website may not be processed, and the agency may not be able to respond to inquiries until appropriations are enacted. The NIH Clinical Center (the research hospital of NIH) is open. For more details about its operating status, please visit cc.nih.gov. Updates regarding government operating status and resumption of normal operations can be found at opm.gov.

People and Communities

Community-engaged research brings people in local communities into the research process, especially those who will benefit from or be impacted by the research. The idea is that people and communities become equal partners in how the study is designed, conducted, analyzed, and shared with the world. Ongoing dialogue ensures that the communities’ beliefs, cultures, languages, needs, and strengths are woven throughout the study’s process.  

Group of people with one hand in middle in-focus.

People from the community bring their lived experiences, needs, and strengths to these studies to:

  • Craft research questions and inform other specific study details.
  • Collect research data using community-informed strategies to engage participants and get meaningful data.
  • Advise on policies and decisions related to safe and effective conduct of the research.  
  • Co-create interventions or programs that have a good fit with the community.
  • Design appropriate materials tailored to those who need them most.
  • Analyze and report data in ways that acknowledge unique strengths and challenges within specific communities.

Benefits of Community-Engaged Research

Community-engaged research can:

  • Address differences in health care access and outcomes by making sure the strategies and interventions studied speak to and meet the needs of the people most affected by the topics being addressed.
  • Build trust in science by including people from the community as equal partners from the start through the end of research studies.
  • Improve health knowledge by working with trusted messengers to address questions, worries, or fears in the community.